аннотация
Today, the topic of special motherhood is coming
to light. This is largely thanks to the internet, as it is easier to share your grief from a distance. This is how the author of this book, the mother of a girl with the rare Cornelia de Lange Syndrome, began her journey. How do you
live when there is no hope? Through small stories written in simple language, we see the acceptance of a new world. Can you reclaim your former life? And was it even life to begin with?